We are entering week 2 of Tristan's first 32 day chemo cycle. He is feeling nauseous most of the time. We try to get him up for a walk when he’s having a good hour.
With leukemia we take everything hour by hour. Marinol has helped stimulate his appetite which is good. We are focusing on small steps . Like keeping up his nutrition and keeping him strong. We put fun tv shows on when he’s feeling weak and can't get out of bed or even game.
He hasn’t lost his hair yet… but he will over next 2 weeks. This is his biggest concern as he loves his long hair. He’s a drummer & a big fan of the band the Doors. He asked for a wig which we are trying to get for him.
The team pre medicated him today and are retrying the important chemo med that he had an allergic reaction to last week. So far so good! 🙏
We are connecting with local families that have had similar experiences who are being extremely helpful in getting us resources.
I start back to work tomorrow 3 days a week. My patients and my practice are important to me. We are a family business so we need to keep on...keeping on. We are trying to keep life as normal as possible (our new normal) to maintain health (physical & mental) for our family. Matt and I continue to switch off so Tristan is never alone. We have another child at home, our niece who is doing her clinical rotation at my practice, 2 fur babies, one cat & 6 chickens.
We will be meeting with the transplant team later this week.
We couldn’t do this without the support of our family, friends, work family & community so thank you. We aren’t the type of people to ask for help or lean on others. The fact that we are speaks volumes. Thank You for being there!